Just Sitting Here

So far today has been basically a calm day. She was awake a lot of the night. Around 2 am she had pulled the suctioning tube out. They redid it and put new tape on it. Well, but this morning she had done it again but they left it out thinking it was done suctioning. Her belly is a lot smaller and softer. Right now they say they are not going to do another x ray. They think because they got so much suctioned out and that she had 6 bms yesterday that she is cleaned out but I am not sure. If she is she is still complaining a little or whatever caused the backup is still there. Last I heard they are going to test for something called Herschsprung Disease where some of the nerves in colon are not working and they would have to operate for that. She is rubbing her face when she eats like she does when anxious or when she does not feel well. So I do not know if it is still bothering her to eat, or if she is just scared to eat from being so full before. They are planning on asking GI whether to do a scope. They are still doing the nutrition through the vein but they also started the tube feedings again so we will see how that goes. Hopefully we will not have any setbacks.