A Little Better

Savannah has been doing a little better this week although still has some complications. She no longer has the fever and bp is back up although she is having swelling problems from the extra fluids again and her temp was a little low today. She is still being treated for the yeast in blood. After the treatment for it they will do more cultures to see if it cleared up. While it is being treated the yeast goes into balls apparently and hides so they did an ultrasound today to look at the organs to see if it was hiding there. We have not got the results yet. She is trying her best to talk and we are going to have to learn to read lips until she can do it well. There are many things that we will have to get used to that will be hard but we will adjust as extra time is something we did not think we would have a few weeks ago. We thank God for all the answered prayers and that we will have some more time with her. We know that it is not a cure but it will give us some more needed time with her and to prepare as well. What is really hard is not having her usual motor mouth that we used to get tired of and for her not to be strong enough to hold her books or markers. Anyone that knows her knows those are 2 things she always wanted to do. Although we yearn for her to be able to do those things we are grateful with the condition she is in and able to be happy some and communicate.

She is still sitting in her therapy chair inside the wheelchair daily at least 4 hours a day watching movies and watching people. Even though she cannot talk well yet she does enjoy watching people. She went to a St Patricks Day party yesterday and could not really squeeze the playdough they gave her or color well without help but she did enjoy sitting there watching. We pray that maybe as time goes by that she will get at least strong enough to color and hold her books to read. If not that is ok too. We know that the treatment of her at home will be hard but it will be well worth it and we will continue to pray for her and be thankful to God for every day that we have with her. We are thankful for the joy she has brought to many lives.

There are some obstacles we will have to figure out. We are thinking somehow we will need a van not only for her wheelchair but because of the fact of 3 car seats trying to get squeezed in a small space in the car. There simply wont be enough room for all the kids and 2 or 3 adults. We will have to figure that one out and see if it would be something affordable for us. Another issue is the car seat they will order for herewill take 6 weeks to come in so in the meantime we will need a 5 point harness car seat without shield until that one comes in. We hate to buy one to use for 6 weeks but we may have to. If anyone knows of one that is not being used that has not been in accident that we can use until then please let us know. Thank you everyone for your prayers and assistance. Hopefully God will answer prayers again and show us a way to get all we need for her at home- it would be nice if somehow she can attend church some and go out and have a little of what she likes again back even just going to the park and watching people sitting in the sun. I think she would enjoy that as well. Thank you again for the prayers. We are confident she is here because of them and He has given her so much strength and fight for a little girl.